Mom Needs Help. That’s okay Dad I’m fine. The doctor said I was just treated incorrectly over the years. Hope they make him a national trainer! No one could tell me if it was a gluten-y noodle or a non-gluten-y noodle, so I spent the rest of the night *just waiting* to get sick. Oh well. OMG. Ps I’ve also never asked them to make me food. OMG I can exhale. I saw a new GI doctor, and she had me cut cow dairy and limit my fat intake a lot. That’s scary that they put the wrong sauce on your first meal. is a link to the website for the Rhode Island dining group I belong to. I had never heard of it and had no idea it was affiliated with P.F. But you never know. Philips Lemon Chicken. Chang’s. Transocean has gluten free artificial crab meat. However, this past weekend my family went there again and this time the waitress was not as friendly or helpful. I have an intolerance to it and it makes me very ill and causes migraines. About 6 months after my 12 yr old son was diagnosed with CD we tried PF Changs. It’s nice knowing that there are other people who feel exactly the way I do about Celiac Disease! I can't say it enough. :-(. My daughter, who is really sensitive to cross-contamination, actually brought her own dinner to a fancy local restaurant for her sister’s birthday. Does Non-Celiac Gluten Sensitivity Exist? ), I have found that the more questions I ask that they either can’t answer or can’t answer well, the less likely they are to balk at me bringing my own food. Chang’s gluten free sauces: chicken broth, oyster sauce, rice wine, sugar, water, wheat free soy sauce and white pepper.”. They were ridiculously busy. I could repeatedly be eating something bad and never know it until someone else tells me. Join the discussion today. I just discovered your blog and am enjoying it so far. I can’t eat off your BBQ. There is always something not right. I come to this blog to feel understood.! Thank you for your note! You are like tonic to the gut, bubbling with humorous dialogue to cure the sad soul of any celiac needing attention. Plus it has made laugh, cry & kept me sane so far. So for my birthday, I made reservations for the family at the closest (40 minutes away) Chang’s. You have given me a better outlook to living with celiac. Oh guys I have laughed and cried reading your posts. Anyway, my heart goes out to you, GD. I guess I assume something is going to get screwed up at some point. The other place I love, and it is VERY high end, is this....Rialto. We have to learn to be persistent in explaining and questioning everything. I’ve had problems at my state’s only PF Chang’s. But I agree that they should have done something. A “gluten-derived chemical”–would be what exactly? Experienced hives on ny face and then got really sick. 5)The dish is then put on a P.F. Also, strangely, drinking warm water + juice of one lemon + honey in the morning before anything else actually helped. Maybe you could call them and ask if they have a dedicated GF wok. in Coping with Celiac Disease, By If it were as simple as eating gluten free, there would be no need for all the talk. well, drat. By Explore our menu, order online, make reservations and get directions to your local P.F. If you ever consider going back again, maybe you should ask for a manager every time. The crispy shell gives way to a warm filling of cabbage, carrots and meat mingled with the nuances of soy sauce and sesame oil. We Celiacs don’t alway show immediate symptoms and if we do its weeks or months after ingesting, and it does real damage that we generally cannot relate to a restaurant cross contaminating or meal because “gluten free people are a dime a dozen”. All their proteins come from their processor marinating in sauces that contain egg. And perhaps some of you are missing my point. After a long days work, I wanted the “treat myself” to a meal that wasn’t leftovers or out of a Styrofoam box. Are a disgruntled employee trashing the place? Like John Lennon coaxing Prudence from her room, the Gluten Dude asks other celiacs to come out and play. The next few times I visited PF Chang’s, it was all good. The only TRULY safe place is a dedicated GF restaurant and bakery where NO gluten has ever been utilized. Find Another Partner. The easiest PF Chang's for you to get to would be White Plains. I'm going to check out the site you suggested. Mrs. Dude and I always say to each other “pick your battles” with the kids. Whenever you’ve got kids in the kitchen and kids serving your meal, you run a risk. Just be sure to read the ingredient list. I got a little rice, but only because I knew it had no wheat in it (other places have wheat in rice, I know “WHAT?”! I stick with these options when I go out- and have done pretty well at staying safe this way- Of course I always tell them how careful I need them to be ,and my husband expands on it even farther to the point he almost becomes aggressive about it- He has seen what happens when I even get a tiny bit of exposure. This probably won’t boost your spirits, but I RARELY eat out and if I do, it’s only at 1 or 2 places that I’m 95% sure the chefs are on top of creating a GF dish. What I do not understand is why their physical menu and online gluten free menu states that they use wheat free soy sauce NOT gluten free. Check out all the listings and if anyone has questions, fire away. Between the tempura, soy, and other wheat products it is a cross contamination nightmare. I just found your website and I wanted to say thanks! Some vinegars are ok, like apple cider or rice vinegar made in a dedicated facility, dedicated equipment. The gluten free diet is scary and confusing, and it doesn't help that it is misrepresented by predatory money grubbers like Papa Johns or Omission (I'm still holding a grudge because I was badly glutened by their nasty beer when it first came out). that is sooo true, they want you to be UNhappy, it gives them power. I totally understand what you are saying about the training aspect but I was miffed that it was such an underwhelming experience, especially when many people rave about the place. Your blog is wonderful; it is such a huge relief to know that you (as well as your followers and guest bloggers) actually understand. It was such a relief to hear other voices and experiences from people I could relate to. Here’s what going to happen: soon, no one will want to bother to put those protocols in place… and we’ll be left with no place to go. Perhaps you should contact corporate about the location you visited. However on the occasion that I find myself at a restaurant I do better ordering plain burgers and steamed vegetables – no sauces or seasoning, Grilled steaks with salad no dressing, Breakfast is easy -realitively speaking- though we all know when we eat anything we did not prepare ourselves we take a risk..but anyway – I usually order fried eggs, sausage or bacon and fruit. But it is a little suspicious that it’s happened to me twice …. The Cantonese Shrimp or Scallops are quite delicious, and very mellow in flavor. (Ex: I asked a waitress at Macayo’s about the seasoning on the salmon for the tacos on the g/f menu; is there soy or yeast? Well, kitchen mixed up the soy sauce and gave me one with gluten. Unreal about the Macayo’s seasoning. BE CAREFUL eating out anywhere. How to Survive (and Thrive) the Gluten-Free Holidays, Stop Blaming Others for Your Lack of Preparation. I’ve eaten at PF Changs in several cities: Chicago, Knoxville and Indianapolis. Maybe you should visit Minnesota and try PF Changs one more time! I am a well educated researcher on celiac disease; because not only was I diagnosed 4 years ago, so was my husband. When we had a death in our family, they were there for us with complimentary meals and TLC. Someone with any number of other reasons, real or imagined to feel “glutened” or want to slam a company? Why the Celiac Hate Jessica Jones? When I got home hubby said, next time bring your own lunch and give the owner 5 bucks like a corkage fee. I get the 8 packs from Amazon for less $$…. Some restaurants have even offered to plate her meal or heat it up for her. I also suspect they don’t use good oil. My husband and I decided to give it another try, but a different location. I LOVE PF Changs! (neither of us has had Chinese good in 3 years since my DX). Hmm I wonder why I can’t retain weight – it couldn’t be their constant cross contamination, ignorance, or verbal abuse over my disease could it?!! I would love to give you my advise, but I think you already know what I will say . Caitlyn Miller Hope some of you can make it to try these places out. However, since I have been glutinated at PF Chang’s twice, in two different locations, spoken to others with similar experiences, as well as, read the other comments on this blog as to their experiences at other locations across the country, I am simply gathering a hypotheses that the problem may be on a corporate or distribution level as opposed to a solitary isolated experience due to cross contamination. As for the chocolate dome thing, I KNEW something was amiss when I was served a lump of cold chocolate! Ever. Is that a hoot. Haha. It is a great support system for me, being that I am alone most of the time. Knowledge is power, or something to that effect. I mean, wouldn’t I have also reported a “glutening” to you all if this were the case? I found P.F Changs in Waikiki and it was great . 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